Art of Dying - Mindfully
“Sometimes we must become our own holy places, roaming cathedrals and memory mausoleums.” – Edwidge Danticat “The Art of Death: Writing the Final Story”
Here, you are invited to look at your life and death, as an artist would. To paint the canvas of your life, your own masterpiece. It is the one that you will leave behind in the museum of life, your work of art. This is not a time to compare or despair. There is still have time to create and clean up the mess and finish your work. Who is on your guest list, and invitations to dine, feast and celebrate your departure from this world? What needs great care and consideration? Our journey will be sacred, to the holy places and cathedrals where souls rejoice, pray with wonder in the memory mausoleums of time.
While we are still alive, we are the ones who get to write the story. In this class, we get the opportunity to face the inevitable fact that we too will die, and prepare for our deaths, like composers planning and orchestrating our lives, like a grand crescendo.
In the video below, Dr. BJ Miller, Jr. is a hospice and palliative care specialist who treats hospitalized patients with terminal or life-altering illness at UCSF Medical Center.
For many of us, who wish to live forever Laurie Segal answers the question of death and takes us on a surprisingly thought-provoking journey into what it would actually mean to live forever.
Staying Alive Resources
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ALS Association– a leading association in the fight against Lou Gehrig’s disease. Please go to “My Community” to find an affiliate closest to you. There are bilingual services and a large amount of up to date information
ALS-Mac Angels Supporting Families with ALS “MAC Angels is a non-profit organization dedicated to supporting families living ALS. They provide services and programs to enhance the quality of life for patients, family members and caregivers who are impacted by ALS. MAC Angels support families in a variety of nonmedical ways. All of their assistance is free. Their goal is to complement the services and support offered by other organizations, not duplicate them. They meet with your family and explore together, how they can help.
American Cancer Society-this national organization has local offices across the country, as well as support services and counseling for every type of cancer. They have a hotline, offer multilingual communication and have clinical trial referrals
Cancer Support Team provides free nursing care, counseling and other supportive services to individuals and families affected by cancer who live in lower Westchester County. CST’s mission is to enhance the quality of life of people at all stages of the disease. 914-777-2777.www.cancersupportteam.org
Creative play: Helping children cope with cancer
KidsKonnect The mission of KidsKonnect is to provide friendship, understanding education
Kids Group — For Children Who Have a Parent with Cancer Face to Face Connecticut A monthly gathering for children ages 5-12 whose parent has cancer. Specially designed craft activities help children feel safe to ask questions, express feelings, and share concerns while learning coping strategies. A concurrent group
Leukemia Lymphoma Society– a national organization dealing with all types of blood cancers. It offers a wide range of free educational and support programs for patients, their families, caregivers and healthcare professionals. Bilingual services are available. Go to their site www.lls.org to locate a branch near you. 800-955-4572 (toll-free)
s Foundation of America – www.lupus.org there are resources, advocacy centers a, directory of local chapters, and calendar of upcoming events.
Mesothelioma Guide–offers patients with mesothelioma easy to understand information about their diagnosis, treatment options
Mesothelioma Center – Provides the most up to date information on
Mesothelioma Specialists Provides mesothelioma patients information on the top Cancer Centers and Doctors who specialize in mesothelioma treatment.
No Boobs About It – The mission is to provide services that facilitate new beginnings in survivorship. It has a wonderful list of resources and other patients share their stories as well.
National Alliance for Grieving Children The National Alliance for Grieving Children promotes awareness of the needs of children and teens grieving a death and provides education and resources for anyone who wants to support them.
National Brain Tumor Foundation–
National Kidney Foundation – www.kidney.org this organization will help you find a local affiliate as well as finding information on advocacy and transplants
Parenting at a Challenging Time In 1997, Dr. Rauch and the chief of child psychiatry at Massachusetts General Hospital for Children, Dr. Michael Jellinek, joined with the leadership of Massachusetts General Hospital Cancer Center, Dr. Bruce Chabner, and then vice president Kate Walsh, to launch an initiative to address the needs of parents with cancer. Attention, time, and resources were committed to helping parents who were concerned about the emotional impact their illness might have on their children.
Parenting With Cancer A resource for parents with cancer and the family and friends who love them.
Sesame Workshop – The When Families Grieve program was developed to help children summon the strength to heal after the death of a parent. Through DVDs, family activities,
SHARE – (Self-Help for Women with Breast and Ovarian Cancer)- provides free support and programs for women with breast or ovarian cancer, and their families and friends. Services offered in Spanish as well. 866-891-2392 (toll-free) www.sharecancer.org
Single Fathers Due to Cancer – The mission is to help single fathers due to cancer cope with the loss of their wife or partner, meet the demands of sole parenthood, and manage their children’s grief.
Susan G Komen for the Cure – information on resources, advocacy, and treatment can be found here. Each Komen affiliate has an emergency fund that can be accessed by your social worker.
Support Connection – provides emotional, social and educational support services to women, their families
Westchester Jewish Community Services – offers a wide variety of community and support services including home health and personal care. There are support group groups and a host of other programs. Located in White Plains, NY their number is 914-761-0600. www.wjcs.com
Established in 1996, Jewish Deaf Resource Center builds bridges between Jews who are
Deaf and Hard-of-Hearing and the individuals and organizations which serve the Jewish community throughout North America. www.jdrc.org
ConsumerAffairs wig resource guide https://www.consumeraffairs.com/wigs
Sleep and Cancer
Research on the effects of cancer and cancer treatment on sleep. Cancer patients are at high risk of suffering from undiagnosed sleep disorders that can harm their sleep duration and quality, which can have significant impacts on recovery. Read their findings here: